Bronx, NY: Montefiore Medical Center is being honored today with the International Rett Syndrome Foundation (IRSF)’s Center of Excellence designation or redesignation. The award recognizes Montefiore’s dedication to providing best-in-class clinical care for Rett syndrome, a rare neurological and developmental disorder. It comes with funding support from IRSF and membership in IRSF’s Center of Excellence Network formed by the newly appointed clinics.
To qualify as a Center Of Excellence, clinics had to complete an application demonstrating how they met the following requirements established by IRSF’s Medical Advisory Board:
- A physician director with expertise in Rett syndrome care
- Health care services that meet the unique needs of individuals with Rett
- Involvement in clinical trials
- Increase understanding of Rett syndrome by contributing to a clinical registry
IRSF’s Center of Excellence designation will officially go into effect on June 1, 2021.
Currently, many families must travel for an entire day to visit a physician who is knowledgeable about Rett syndrome. Montefiore’s involvement in the Center of Excellence network will help mitigate this situation. Its recognition as a leader in Rett syndrome care will make it the go-to clinic for local families as well as help to educate other physicians about Rett syndrome care.
“The infrastructure created by our Center of Excellence partners allows us to aggressively engage in clinical research,” says IRSF CSO Dominique Pichard, MD, “This is the only way to make treatment options and curative therapies a reality for ALL families living with Rett syndrome.”
About International Rett Syndrome Foundation
The International Rett Syndrome Foundation (IRSF) is the leading research and empowerment organization for Rett syndrome. Investing over $51 million in research that has advanced therapeutics to clinical trials, including Rett syndrome’s first-ever phase 3 clinical trial. IRSF’s vision is to create a world without Rett syndrome and we are reaching that vision through developing a robust pipeline of treatments and empowering families with information, knowledge and connectivity. Further information can be found at: www.rettsyndrome.org